Skip to main content

Goodbye steroids

Dad came with another batch of lemon kale yesterday. It's pretty amazing how much kale it takes to make a single serving of kale on a plate. I ate up all that kale and was ready for more, but now my parents have to go collect a heaping load of kale, get the chunky stems out, and cook it all down till it fits in a neat little container.

It's not just kale. I've been hungry for everything in general. A couple days ago I must have polished off about a pound of leftover nachos. After eating the lunch provided by the hospital. It's good to have an appetite, and pretty miraculous under the circumstances, but it's hard to keep up with. So far today I've had peanut butter oatmeal, greek yogurt with homemade granola, two slices of bacon, a strawberry protein shake, two tea-flavored Kit-Kats, dover sole, rice, asparagus, and a banana with almond butter. And dinner is still a ways off. I've lost about ten pounds so far in the hospital, and I know I can't attribute that to the amount of food I've been eating.

Since I was so excited about the kale yesterday, and had some energy, I was inspired to walk the hospital stairs. I'd been meaning to mail a postcard for a few days, and I finally worked out where the mailbox is. It's a really old-timey looking affair, all metal and art deco. I couldn't figure out at first where the letters actually went. Good thing for me someone else was mailing a letter at the same time and showed me where the slot was. So I know it must still be in service.

I'd walked down to the first floor to stick the postcard in the slot, and decided to walk back up to the fifth floor. I don't like taking the elevator in the hospital during normal hours anyway. The spaces are so enclosed and I feel like there are germs hanging in there waiting to get me. All the sick people take the elevator. But all the healthy, energetic people take the stairs, and the stairwell is nice and airy. Besides the railings, I don't feel like I'm walking through a petri dish. I haven't climbed so many stairs in a while, and it felt like it took forever, but by the time I got back to my unit it had been less than five minutes.

When Dad came I made him walk the stairs again, this time all the way up to the ninth floor. Then we explored each floor of the hospital on the way back down to the fifth. There wasn't a lot to see. The fifth floor is open and you can walk around and not get stopped anywhere. But it seems like every other floor has a check-in area that you're not supposed to go beyond. If you do, they'll ask if you're lost or need help.

I think that was probably my last stair climb for a while. This morning I could finally tell that I was no longer on steroids. I started getting ready to take a shower, got lightheaded, and had to sit down and eat a full breakfast before I could keep going. I haven't even left my room yet today. I'm back to feeling like sitting up, listening to music, and moisturizing are perfectly acceptable forms of exercise.

What's your cop-out exercise?
Best kept secret on the block, Rose Medical Center nachos

Comments

  1. I called today's fridge cleaning "exercise". Took a nap after doing each shelf. Never did the last one. Better luck tomorrow!

    ReplyDelete
  2. Sometimes if I'm a certain kind of sleepy where I don't want to get up but I don't want to sleep ill jiggle my feet to keep me in a dozing state for longer... ahhh sweet dozing...

    ReplyDelete
    Replies
    1. interesting - that's what I do to wake up from sleep paralysis

      Delete

Post a Comment

Popular posts from this blog

A Nearly Final Farewell from Sarah's Parents

Dear Friends - We are deeply saddened that Sarah has entered the ending chapter of her battle with this horrific cancer. The medical experts expect only days left to live. It would really lift her spirits to read about memories you've shared with her and any other comments that you would like to offer. We look forward to hearing from you very soon, and we will read all comments out loud to her. Sarah is doing her best to be her usual spirited self in spite of these difficult times. We are grateful for everyone who has been a part of her remarkable life. Sarah's Mom and Dad

Guinea Pig

Today is day 4 of my first, and hopefully last, clinical trial. It's the first day I haven't had an appointment at the Sarah Cannon Colorado Blood Cancer Institute. I think it might be good luck that the institute and I share the same first name. CBCI is attached to Presbyterian St. Luke's, just a stone's throw from Denver's city park, where you would find the zoo and the museum of nature and science. Brent and I keep saying we'll go to the planetarium one of these days before or after one of my appointments, but it hasn't happened yet. The first day of the trial was long, over 12 hours. It started with an icy drive in, followed by a few unsuccessful attempts to draw my blood before resorting to another picc line. I then met with Dr. Maris, who gave me news I should have been expecting. The results of my testing from the previous week were in, and they didn't look awesome. My bone marrow biopsy showed that the leukemia was back up to 30%. Since my las

What in the hell happened?

Well, I planned to use this domain for some cool, nerdy dev stuff, but "Sarah Develops...Leukemia" kind of works too. I decided to at least try to start a blog to let people know what's going on because I'd like to be in touch with everyone but I'm sure pretty soon I just won't have the energy to tell everyone everything separately. So, how did I get to be laying in a bed on the 5th floor of the Denver VA hospital? I got my first headache on July 15th, just over a month ago now. Brent and I and Pisco went on a long hike in Golden Gate Canyon State Park. All the wildflowers were out, and we saw a moose (my first Colorado moose sighting ever). It was a pretty ideal day. I drove home, parked the car, walked into the house, and was suddenly hit by a pounding stop-you-in-your-tracks kind of headache. I learned later that it was a thunderclap headache, and I started getting them every few days. Then they became more frequent. I took ibuprofen to keep the headac