Skip to main content

Blood wars

I know some people dread blood draws, but I have never had a problem with needles. But things have changed. Every day that I'm in the hospital, I have someone taking blood from my arm at least once a day. With a central line, it's not a problem at all. But once I get a blood infection, that central line comes out. And getting blood out of my arms becomes a problem. Maybe because my blood volume is lower my veins are smaller. Maybe because I've been stuck so many times my veins are scarred and it's harder to get into them. Maybe with all the drugs going through my veins they are more irritable. But whatever it is, my body doesn't like letting go of blood, and getting that sample every day is a challenge. I have one peripheral line in now, and everyone (including me) prefers that blood is drawn from there so I don't have to get stuck. Yesterday Matt from the IV team came in and worked his magic, using a heat pack, massaging the entry point, pulling on the line to work away the adhesions that might have formed between the catheter and the wall of my vein. It took about 20 minutes, but he finally got enough blood out.

Because the whole process has become so difficult, I've become much more guarded when it comes to my veins. One day someone from the lab came into my room and announced she was going to draw some blood for a CBC. And I was like, "Bitch, you better back off of my veins!" Actually, I didn't say the bitch part. Actually I didn't say anything like that at all. But I did turn her away, because what she said made no sense. I'd just had blood drawn a few hours earlier. What would change in a few hours? I figured out the medicine team wanted a new CBC after I was transfused, but I hadn't been transfused yet. Someone screwed up, and if I hadn't said anything I probably would have ended up with three blood draws in one day. I basically told the medicine team to back off on the labs, and they agreed to only one draw per day. And at noon rather than 5am. That way I won't be woken up at 4:30am by some nurse trying to get blood cultures out of me. Which involves two big needle sticks and 40cc of blood taken from my arms.

It seems silly to use up so much blood for cultures when a transfusion of a unit of blood gives me about 350cc. And that's if I can even get blood. Yesterday my platelets were down to 7. Normal is somewhere in the hundreds. I was told I would get a unit of platelets yesterday, but I was still waiting at 10pm. Then my nurse came in and told me the blood bank didn't have matching platelets available. I finally got some this morning, so I feel a lot better. Just kidding, I feel no different. But hopefully now I'll stop bleeding...if I start bleeding somewhere. If you live in Denver and have blood to donate, I'd appreciate it if you would. Especially if you're O- like me.

Earning my stripes?

In other news, I got outside the other day after spending an entire week in my hospital room. I'm not sure if I have ever spent an entire week in a room before. When I went went outside, I felt like I was walking very fast. Like the feeling you get at an airport when you step onto the moving walkway. I walked very fast to the park, and the park looked very different too me. I thought to myself, "This is what happens when you spend so much time inside. You come outside and you see things in a whole new light." Then I realized it looked different because all the trees were naked. A week before, all the trees had yellow and brown leaves, and they had since fallen off. I guess some changes are a matter of perspective, but some changes are actually real.


Comments

  1. Hi Sarah. Getting stuck with needles sounds like a pain. I was so sad about Waffles... I think she lived a good life.

    As for seasons: soon you'll have snow there! That'll be crazy. I think anywhere that has snow is crazy. I live in a place that has snow once every 15 years or so, and I feel like I haven't seen it in forever. I miss snow. And now I miss Waffles and I didn't even know her!

    I miss you too. I'll see you soon...

    ReplyDelete
  2. Good job warding off the vampires. I hope you’re getting some more outdoor time in between all that nonsense.

    ReplyDelete

Post a Comment

Popular posts from this blog

A Nearly Final Farewell from Sarah's Parents

Dear Friends - We are deeply saddened that Sarah has entered the ending chapter of her battle with this horrific cancer. The medical experts expect only days left to live. It would really lift her spirits to read about memories you've shared with her and any other comments that you would like to offer. We look forward to hearing from you very soon, and we will read all comments out loud to her. Sarah is doing her best to be her usual spirited self in spite of these difficult times. We are grateful for everyone who has been a part of her remarkable life. Sarah's Mom and Dad

Guinea Pig

Today is day 4 of my first, and hopefully last, clinical trial. It's the first day I haven't had an appointment at the Sarah Cannon Colorado Blood Cancer Institute. I think it might be good luck that the institute and I share the same first name. CBCI is attached to Presbyterian St. Luke's, just a stone's throw from Denver's city park, where you would find the zoo and the museum of nature and science. Brent and I keep saying we'll go to the planetarium one of these days before or after one of my appointments, but it hasn't happened yet. The first day of the trial was long, over 12 hours. It started with an icy drive in, followed by a few unsuccessful attempts to draw my blood before resorting to another picc line. I then met with Dr. Maris, who gave me news I should have been expecting. The results of my testing from the previous week were in, and they didn't look awesome. My bone marrow biopsy showed that the leukemia was back up to 30%. Since my las

What in the hell happened?

Well, I planned to use this domain for some cool, nerdy dev stuff, but "Sarah Develops...Leukemia" kind of works too. I decided to at least try to start a blog to let people know what's going on because I'd like to be in touch with everyone but I'm sure pretty soon I just won't have the energy to tell everyone everything separately. So, how did I get to be laying in a bed on the 5th floor of the Denver VA hospital? I got my first headache on July 15th, just over a month ago now. Brent and I and Pisco went on a long hike in Golden Gate Canyon State Park. All the wildflowers were out, and we saw a moose (my first Colorado moose sighting ever). It was a pretty ideal day. I drove home, parked the car, walked into the house, and was suddenly hit by a pounding stop-you-in-your-tracks kind of headache. I learned later that it was a thunderclap headache, and I started getting them every few days. Then they became more frequent. I took ibuprofen to keep the headac