Skip to main content

Free at last

I watched the clock all morning as the minutes ticked down. Today was chemo drip disconnection day, and I could not wait to be free of this device. For a week I've been carting it around with me everywhere I go. I unplug it and cart it into the bathroom with me every time I need to pee. When I do my laps around the halls, I push it around with one arm trying to keep it from swirling around uncontrollably. Finally, just after 1:30, nurse Eunice freed me from Dmitry.

Eunice and Dmitry
I promptly took a shower. For the first time in a week I didn't need to cut my left sleeve strap and reattach it with a safety pin to put a shirt on. Things are looking up.

The bad part now of course is the neutropenia. I'm basically like a newborn baby with no immunity, and the thought of walking around through this hospital and outside gives me the willies. Going downstairs for my eye exam a couple days ago was pretty taxing. It was cold down there, there were lots of people with cooties, and I felt very far from my warm cozy womb up on the 5th floor. By the time I was getting wheeled back, I was covered in white blankets, a mask to keep out germs, and a visor for my dilated eyes. I felt like an injured, helpless animal.

Good thing there are places for us injured, helpless animals.

Comments

  1. It's good in a weird way that you think of the 5th floor of the hospital as a "womb." I guess you've settled in a bit. Also good that they are taking care of you.

    ReplyDelete
  2. Hi, Sarah! It's also Sarah, Elizabeth's friend in Boston :) I'm so sorry you are dealing with this right now! I had Non-Hodgkin's lymphoma not that long ago (~5 years) and I can relate to some of the things you are going through now. I remember wheeling that tippy IV pole down the halls and holding the lines up in the air in the bathroom...ugh! I have two cats and I work at a veterinary practice so I'll post cute pictures if you'd like! :) Ask me questions if it helps...every cancer patient has a different experience, but the IV pole, gross hospital fare, and arm bruises are standard issue :( Thinking of you! xo Sarah

    ReplyDelete

Post a Comment

Popular posts from this blog

A Nearly Final Farewell from Sarah's Parents

Dear Friends - We are deeply saddened that Sarah has entered the ending chapter of her battle with this horrific cancer. The medical experts expect only days left to live. It would really lift her spirits to read about memories you've shared with her and any other comments that you would like to offer. We look forward to hearing from you very soon, and we will read all comments out loud to her. Sarah is doing her best to be her usual spirited self in spite of these difficult times. We are grateful for everyone who has been a part of her remarkable life. Sarah's Mom and Dad

Guinea Pig

Today is day 4 of my first, and hopefully last, clinical trial. It's the first day I haven't had an appointment at the Sarah Cannon Colorado Blood Cancer Institute. I think it might be good luck that the institute and I share the same first name. CBCI is attached to Presbyterian St. Luke's, just a stone's throw from Denver's city park, where you would find the zoo and the museum of nature and science. Brent and I keep saying we'll go to the planetarium one of these days before or after one of my appointments, but it hasn't happened yet. The first day of the trial was long, over 12 hours. It started with an icy drive in, followed by a few unsuccessful attempts to draw my blood before resorting to another picc line. I then met with Dr. Maris, who gave me news I should have been expecting. The results of my testing from the previous week were in, and they didn't look awesome. My bone marrow biopsy showed that the leukemia was back up to 30%. Since my las

Obituary

Sarah will have a military burial at the Ft. Logan Cemetery in Denver on Monday, May 21st, at 1:00 pm. Her obituary can be found at the All Veterans web site at: https://www.allveterans.com/obituaries/sarah-elizabeth-lobser/ but it is also repeated below: As the sun sets it rises beyond the horizon. Sarah Elizabeth Lobser passed away peacefully in the evening of April 26, 2018 at the age of 38 years. She was surrounded by friends, family, and loved ones after a multi-day celebration with many happy moments. Her sense of humor shone through to the very end, and her life and spirit will continue to be an inspiration. Sarah gave us the gift of bringing all of us together. Sarah is survived by her parents, Monica and Greg, and her brothers, David and Daniel. Military services to celebrate her life are scheduled at Ft. Logan Cemetery on Monday, May 21st at 1:00 p.m.  Sarah graduated from Smith College in 2001 with a Bachelors in Mathematics. She graduated