Skip to main content

Holding steady at zero

Every morning since I got the picc line taken out I've had a blood draw. I started bracing myself for that 5am wake up call when I would see the phlebotomist walk in and I would know who'd be poking me that day. This week I've been lucky to get Inna, a Polish woman who reminds me of a fairy with golden curls and delicate fingers. She pops into my room and wraps a tourniquet around my left arm, feeling for the vein. "Oyoyoyoyoyoyoyoyyy!" she says every time, look at the accumulating bruises. Then, "this is going to hurt, I'm so sorry." And she seems truly sorry to have to do it. But she pops the needle in, and it doesn't hurt. And a few seconds later, it's over. And every morning she leaves me a whole roll of Coban, in case I want to wrap the dressing tighter. Now I have a stack of Coban rolls next to my bed.

The results from the CBC come back an hour or so later, and I'm always eager to hear the news. But lately it's been pretty much the same every day. I have no blood. Ok, I have blood, but my counts are still very low. I think white blood cells are supposed to be up around 4.4, and mine are sitting at 0.7. My hemoglobin is still below 8. My platelets are dropping again, maybe since they were artificially pumped up with the transfusions.

I suppose the factory was wiped out in the flood, and it has to be rebuilt before production can start up again. This is all the expected result of the chemo, so I should just be patient and wait for my body to do its thing.

What do you hate waiting for your body to do?

Linda's homemade pumpkin pie. Mmmm.
Also, I think I'm on my third pie.

Comments

  1. Hm. I hate waiting for my body to fall asleep sometimes. And sometimes I hate waiting for it to wake up.

    I like the sound of this Ima lady.

    ReplyDelete
  2. I agree with everything Erin said.. and that pie looks amazing!

    ReplyDelete

Post a Comment

Popular posts from this blog

A Nearly Final Farewell from Sarah's Parents

Dear Friends - We are deeply saddened that Sarah has entered the ending chapter of her battle with this horrific cancer. The medical experts expect only days left to live. It would really lift her spirits to read about memories you've shared with her and any other comments that you would like to offer. We look forward to hearing from you very soon, and we will read all comments out loud to her. Sarah is doing her best to be her usual spirited self in spite of these difficult times. We are grateful for everyone who has been a part of her remarkable life. Sarah's Mom and Dad

Guinea Pig

Today is day 4 of my first, and hopefully last, clinical trial. It's the first day I haven't had an appointment at the Sarah Cannon Colorado Blood Cancer Institute. I think it might be good luck that the institute and I share the same first name. CBCI is attached to Presbyterian St. Luke's, just a stone's throw from Denver's city park, where you would find the zoo and the museum of nature and science. Brent and I keep saying we'll go to the planetarium one of these days before or after one of my appointments, but it hasn't happened yet. The first day of the trial was long, over 12 hours. It started with an icy drive in, followed by a few unsuccessful attempts to draw my blood before resorting to another picc line. I then met with Dr. Maris, who gave me news I should have been expecting. The results of my testing from the previous week were in, and they didn't look awesome. My bone marrow biopsy showed that the leukemia was back up to 30%. Since my las

What in the hell happened?

Well, I planned to use this domain for some cool, nerdy dev stuff, but "Sarah Develops...Leukemia" kind of works too. I decided to at least try to start a blog to let people know what's going on because I'd like to be in touch with everyone but I'm sure pretty soon I just won't have the energy to tell everyone everything separately. So, how did I get to be laying in a bed on the 5th floor of the Denver VA hospital? I got my first headache on July 15th, just over a month ago now. Brent and I and Pisco went on a long hike in Golden Gate Canyon State Park. All the wildflowers were out, and we saw a moose (my first Colorado moose sighting ever). It was a pretty ideal day. I drove home, parked the car, walked into the house, and was suddenly hit by a pounding stop-you-in-your-tracks kind of headache. I learned later that it was a thunderclap headache, and I started getting them every few days. Then they became more frequent. I took ibuprofen to keep the headac