Skip to main content

My fluids

Sorry, this one isn't about urine. It's about cerebrospinal fluid. I said before that the preliminary results from my lumbar puncture seemed to look good, meaning no blasts in there. Dr. Patil said the fluid was crystal clear, which is good news. But Drs. Patil and Bowles came by a bit ago to tell me further investigation was inconclusive.

I guess the pathologist did see a small number of blasts in the sample. It's possible though that these blasts actually came from blood that was encountered as the needle was pulled out of the spinal column. The only way to know for sure of course is to do another lumbar puncture! Hooray!

Sounds like this will happen Friday. And this next time they will draw out more fluid, using a few different vials. If there are more blasts in the first vial, or some in the first and none in the last, they can say more conclusively that my cerebrospinal fluid is clear.

If they find that there are actually blasts in there, I will need Cytarabine in my spine just as much as I need it in the rest of my body. Which means I either get twice weekly spinal injections of the stuff, which I think would be pretty heinous (do people still say that?), or I go home with a port in my skull.

Maybe they'd settle for a tattoo.




Comments

Popular posts from this blog

Sarah Lobser - January 23rd 1980 - April 26th 2018

This is a link to a shared photo gallery, please add your own! https://photos.app.goo.gl/9VvG4uLed9lvU6o62 Sarah Lobser passed away peacefully in the evening surrounded by friends and loved ones after a multi-day celebration with many happy moments. Her sense of humor shone through to the very end and her life and spirit will continue to be an inspiration. Sarah gave us the gift of bringing all of us together. All of your comments on this blog kept her spirits up through this long, difficult time. If you are so inclined to help others in need, please sign up to be a bone marrow donor or donate to the Leukemia and Lymphoma Society and of course, add your photos to the shared gallery. Much Love, The Lobsers

A Nearly Final Farewell from Sarah's Parents

Dear Friends - We are deeply saddened that Sarah has entered the ending chapter of her battle with this horrific cancer. The medical experts expect only days left to live. It would really lift her spirits to read about memories you've shared with her and any other comments that you would like to offer. We look forward to hearing from you very soon, and we will read all comments out loud to her. Sarah is doing her best to be her usual spirited self in spite of these difficult times. We are grateful for everyone who has been a part of her remarkable life. Sarah's Mom and Dad

Taking drugs is a full time job

It almost feels like I never left. After a week at UC Health, and a glorious ten days at home, I'm back at the VA for take three of chemo. I'm at the point where I feel almost recovered from the last two rounds. I can walk at a fairly normal pace, I can climb stairs without feeling (abnormally) out of breath, and my guts aren't constantly in a twist. I even had a beer with coworkers on Friday. It was really nice to see everyone, and I was pretty much my old self. So it seems a shame to put more poison in my body and fall back into the sick zone. I know in about a week I'll be feeling pretty shitty, so I don't know what kind of Halloween costume I'll be able to pull off. Any suggestions? This round of chemo is called GCLAM: three days of Mitoxantrone, and five days of Cytarabine and Cladribine. I also get shots of Filgrastim to stimulate my bone marrow to produce more white blood cells. Hopefully this will help lessen the blow of the other drugs, my cell count...