Skip to main content

My vein hose

I have lots of holes in me right now, even more than a normal girl. One of them is for a picc line (peripherally inserted central catheter). The catheter goes from a vein in my arm, up around my shoulder, right down to the superior vena cava where the drugs can be delivered very close to my heart. If I remember correctly, the reason they put these in is because the drugs are so caustic to the veins. If they are delivered in a peripheral vein there might be too much dwell time in one spot, causing damage to the vein. If they are delivered to the heart, the heart will pump them through quickly and make them more diffuse throughout the vascular system.

Did I just make all that up?



So I got this line put in my first day in the hospital, August 21st 2017, and a few hours later I started noticing I was getting slight palpitations now and then. The next day I had an echocardiogram, and the tech pointed out the tip of the catheter flapping around along with my heart valves. Apparently the line was in a little too far (it was inside my atrium) so it had to be backed out a couple centimeters.

Since I'm on the subject of holes, why don't I tell you about my lumbar puncture, a.k.a. spinal tap?
Since my first and really only symptom was a headache, the doctors wanted to be sure the leukemia wasn't in my central nervous system already. It's rare for this type of cancer, but it happens. And they figured if it had spread, that would surely explain the headaches.

So yesterday I curled up in the fetal position on my side while the doctor stuck a tube into my spinal column between I think L3 and L4. It wasn't the most comfortable thing, and my nerves got jangled for sure, but all in all I'd give it a 3 on a scale of 1 to terrible. They sucked out 10ml I think of cerebrospinal fluid for testing, and injected the same amount back in of cytarabine. This was done as a prophylactic spinal chemo.

Preliminary results showed no blasts in my csf, so yay for me!

Comments

Popular posts from this blog

Taking drugs is a full time job

It almost feels like I never left. After a week at UC Health, and a glorious ten days at home, I'm back at the VA for take three of chemo. I'm at the point where I feel almost recovered from the last two rounds. I can walk at a fairly normal pace, I can climb stairs without feeling (abnormally) out of breath, and my guts aren't constantly in a twist. I even had a beer with coworkers on Friday. It was really nice to see everyone, and I was pretty much my old self. So it seems a shame to put more poison in my body and fall back into the sick zone. I know in about a week I'll be feeling pretty shitty, so I don't know what kind of Halloween costume I'll be able to pull off. Any suggestions? This round of chemo is called GCLAM: three days of Mitoxantrone, and five days of Cytarabine and Cladribine. I also get shots of Filgrastim to stimulate my bone marrow to produce more white blood cells. Hopefully this will help lessen the blow of the other drugs, my cell count...

Transfusion

I didn't know I could get so excited about blood products being injected into my body. But the days of anticipation paid off and I finally got a transfusion yesterday. It was a little nerve wracking signing the waiver when they told me the odds of contracting hepatitis or HIV, but then I remembered the other odds they gave me, so I said fuck it. I got two units of red blood cells and two units of platelets. It's pretty interesting how they have all the blood components separated out. I guess blood used for transfusions like this is specially filtered and irradiated so I don't get anything, like white blood cells, that would be bad for me. fresh blood It took hours to get it all in there. It gave me a metallic taste, but after a while I felt a little more alive. I could take a deeper breath, walk outside with Brent, and eat food. Hospital food even. Though, I much preferred the strawberry banana smoothie Brent brought for me. That tasted a lot better than blood. I...

Sarah Lobser - January 23rd 1980 - April 26th 2018

This is a link to a shared photo gallery, please add your own! https://photos.app.goo.gl/9VvG4uLed9lvU6o62 Sarah Lobser passed away peacefully in the evening surrounded by friends and loved ones after a multi-day celebration with many happy moments. Her sense of humor shone through to the very end and her life and spirit will continue to be an inspiration. Sarah gave us the gift of bringing all of us together. All of your comments on this blog kept her spirits up through this long, difficult time. If you are so inclined to help others in need, please sign up to be a bone marrow donor or donate to the Leukemia and Lymphoma Society and of course, add your photos to the shared gallery. Much Love, The Lobsers