Skip to main content

Moving target

Friday night I got the chills. Shivering, teeth clattering, I asked for a warming blanket. Then another. Pretty soon I was bundled up under half a dozen blankets that came straight from the warmer. In an already warm room. My fever spiked to 102.5, but by then the doctor on call had been notified, antibiotics had been ordered, and I was hooked up to Dmitry once again. My temperature was back to normal after the first dose of antibiotics, and I threw those blankets on the floor, but the following day came with a slew of diagnostic tests. I had another set of blood cultures, with 40cc of blood taken out of me through a slightly larger than normal needle. I peed in a cup. A fancy machine was wheeled into my room and pointed at my chest for an X-ray.

I get it. I get why I'm in the hospital now. Every day is different. Every day doctors are adjusting my treatment to what my body is doing. And every day I'm adjusting to a new situation. First I'm on chemo. I can't eat. I can't sleep without help. I can't poop without help. I'm swollen. Then I'm off chemo. I get sick. I can't not poop without help. My belly is in pain. I sleep on and off throughout the day. I can barely move one day, then I'm walking to the park the next. My skin is overly sensitive one day, then itchy the next. I can't use my left arm normally one day, then my right is out of commission. I'm eating nothing but chicken broth for days, then jelly beans sound good.

And now I have hemorrhoids! These would normally seem harmless and I'd let them go away on their own, but I feel like if one of these suckers were to start bleeding that'd be a great potential source of infection. And uncontrollable bleeding. I ask the doctors how people actually die from AML. Do they die from the cancer? Or do they die from the treatment? Dr. Bowles told me a lot of people die from secondary infection, like pneumonia. I really wouldn't want to die from an infected hemorrhoid. That would be a very unsatisfying end to this blog.

I wish it were true
This is more like it

Elizabeth and David have been in town this weekend, and that's been a good distraction. From hemorrhoids and everything else. They wear masks, and constantly disinfect their hands and everything they touch. We attached my iPad to the infinitely manipulatable tv with Coban and watched Kung Fury, which I can now highly recommend.

Elizabeth's family brought me personalized sheets

Sorry David and Elizabeth, for mentioning you in a post in which I also talk about hemorrhoids. I even talk about hemorrhoids first. But that doesn't make you less important than hemorrhoids. Nothing is less important than hemorrhoids.

Comments

  1. It's fun to share space in a post about hemorrhoids!

    ReplyDelete
  2. It is an honor and privilege to be mentioned in the same breath as your hemorrhoids.

    ReplyDelete

Post a Comment

Popular posts from this blog

Transfusion

I didn't know I could get so excited about blood products being injected into my body. But the days of anticipation paid off and I finally got a transfusion yesterday. It was a little nerve wracking signing the waiver when they told me the odds of contracting hepatitis or HIV, but then I remembered the other odds they gave me, so I said fuck it. I got two units of red blood cells and two units of platelets. It's pretty interesting how they have all the blood components separated out. I guess blood used for transfusions like this is specially filtered and irradiated so I don't get anything, like white blood cells, that would be bad for me. fresh blood It took hours to get it all in there. It gave me a metallic taste, but after a while I felt a little more alive. I could take a deeper breath, walk outside with Brent, and eat food. Hospital food even. Though, I much preferred the strawberry banana smoothie Brent brought for me. That tasted a lot better than blood. I...

Taking drugs is a full time job

It almost feels like I never left. After a week at UC Health, and a glorious ten days at home, I'm back at the VA for take three of chemo. I'm at the point where I feel almost recovered from the last two rounds. I can walk at a fairly normal pace, I can climb stairs without feeling (abnormally) out of breath, and my guts aren't constantly in a twist. I even had a beer with coworkers on Friday. It was really nice to see everyone, and I was pretty much my old self. So it seems a shame to put more poison in my body and fall back into the sick zone. I know in about a week I'll be feeling pretty shitty, so I don't know what kind of Halloween costume I'll be able to pull off. Any suggestions? This round of chemo is called GCLAM: three days of Mitoxantrone, and five days of Cytarabine and Cladribine. I also get shots of Filgrastim to stimulate my bone marrow to produce more white blood cells. Hopefully this will help lessen the blow of the other drugs, my cell count...

A Nearly Final Farewell from Sarah's Parents

Dear Friends - We are deeply saddened that Sarah has entered the ending chapter of her battle with this horrific cancer. The medical experts expect only days left to live. It would really lift her spirits to read about memories you've shared with her and any other comments that you would like to offer. We look forward to hearing from you very soon, and we will read all comments out loud to her. Sarah is doing her best to be her usual spirited self in spite of these difficult times. We are grateful for everyone who has been a part of her remarkable life. Sarah's Mom and Dad