Skip to main content

On to round 2

Drs. McDermott and Gorden stopped by today and let me in on my latest test results. For one thing, the cytogenetic testing of the sample from my first bone marrow biopsy finally came back. This was the test we were waiting on to get a full picture of what specific mutations were in my leukemia cells. In addition to monosomy 7, I also have a KRAS mutation. And that's it. The KRAS mutation apparently doesn't make a prognostic impact. Monosomy 7 is still the only important factor in terms of survival odds and such.

The other test they were talking about I didn't even realize they were doing. The pathologist was able to do some testing on the second bone marrow biopsy sample that specifically targeted currently dividing cells. There were 11 such cells, and they all had monosomy 7. They were all cancerous. So basically, the leukemia is definitely still there. And because they have such a clear sign that the leukemia is still there, I get to start another round of chemo right away.

The second round of chemo is going to be FLAG-IDA, which seems like an acronym with the names of the drugs involved, but I can't figure out exactly how it lines up. The drugs are Fludara, Cytarabine, and Idarubicin. I had Cytarabine and Idarubicin for the 7 + 3 induction chemo. This second round will add one more drug in, but the treatment will only go on for 5 days instead of 7. For the first three days I'll be getting all three drugs. The last two days I'll get two of them.

The good news is...only 5 days of chemo this time! That's like a work week. Or a holiday weekend that you decide to extend so you can drive out to the Grand Canyon. This will be like my own personal Grand Canyon.

The other good news is I'll get another picc line put in. And that means no more daily blood draws. They'll just take it from the picc.

The bad news is I can look forward to more swelling. And I'll be hooked up to Dimitry again. So time to break out the safety pins. And I won't able to eat much of anything. I might be sipping on chicken broth for five days, but at least I have all those spices Ben sent. Mmmmm....flavor.

I'm a bunny

Comments

  1. Flava! You should get a groovy velcro outfit that is easy to get on and off without disconnecting Dimitry. Like those velcro track pants that can be whipped off one-handed with a single tug!

    ReplyDelete
  2. Sara - Well I"m so sorry but I have just binge read most of your posts for the last two weeks!! I guess I need to subscribe so I can get the latest posts. (I promise I'll do it!)
    Thanks for sharing all the educational information - I 've never heard so many big words (I work with preschoolers! LOL!). I'm very impressed that you can spell everything and be able to explain what's going on in plain English. You are a true warrior in this battle leaving no term unexplained. I hope you are getting some relief from the terrible hemorrhoids and wishing you a week of powerful cancer fighting!

    ReplyDelete
  3. Distinctive ideas and quality writing allow dignotech to establish itself as an impressive online destination where informative articles are presented with consistency and professionalism for readers of every interest.

    ReplyDelete
  4. Harmonious design elevates the browsing experience, reminder management systems support efficient scheduling and productivity growth. FindRemind consistently delivers valuable resources that help readers remain organized while enjoying accessible and engaging content.

    ReplyDelete

Post a Comment

Popular posts from this blog

Sarah Lobser - January 23rd 1980 - April 26th 2018

This is a link to a shared photo gallery, please add your own! https://photos.app.goo.gl/9VvG4uLed9lvU6o62 Sarah Lobser passed away peacefully in the evening surrounded by friends and loved ones after a multi-day celebration with many happy moments. Her sense of humor shone through to the very end and her life and spirit will continue to be an inspiration. Sarah gave us the gift of bringing all of us together. All of your comments on this blog kept her spirits up through this long, difficult time. If you are so inclined to help others in need, please sign up to be a bone marrow donor or donate to the Leukemia and Lymphoma Society and of course, add your photos to the shared gallery. Much Love, The Lobsers

A Nearly Final Farewell from Sarah's Parents

Dear Friends - We are deeply saddened that Sarah has entered the ending chapter of her battle with this horrific cancer. The medical experts expect only days left to live. It would really lift her spirits to read about memories you've shared with her and any other comments that you would like to offer. We look forward to hearing from you very soon, and we will read all comments out loud to her. Sarah is doing her best to be her usual spirited self in spite of these difficult times. We are grateful for everyone who has been a part of her remarkable life. Sarah's Mom and Dad

Recovering, with Steven Seagal

I know I'm recovering because my cell counts are going up. But I can tell I'm recovering because I'm getting restless. Being in the hospital got really old all of a sudden. And being at the University hospital got old even faster than being at the VA. Everyone here seems to think the VA is more regimented, or more military-esque? But when I was there I could take long walks outside around the park, or go over to Rose to get a chai. I had so much stuff in my room, I would spend close to an hour every morning just rearranging it all. I was running out of room on the walls to hang cards and decorations. At the new place, it took a while before they were willing to disconnect me from my IV pole. I have to put on a gown before I leave my room for a walk (which makes sense, what with the c. diff). I can't bring all that stuff into my new room because it's probably contaminated now (with c. diff spores). There's a very small area where I can walk outside. Overall, t...